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Title: Whither Pediatric Research and Predisposition Genetic Testing?
Authors: Farkas Patenaudel, Andrea
Sénécal, Karine
Avard, Denise
Issue Date: 2006
Publisher: GenEdit
Abstract: Research in which children undergo genetic testing for predisposition to adult-onset diseases or disorders can lead to a better understanding of these conditions. It can possibly also help encourage early detection and the development of clinical and preventive interventions for those found to be at increased hereditary risk. Increasingly, predisposition testing is becoming part of pediatric genetic research. However, the paucity of normative texts about the conduct of pediatric research using predisposition genetic testing generates complex legal and ethical issues. Drawing on the current texts that govern predisposition genetic testing in research and the norms of pediatric research, we outline points of consensus and divergence as well as recommendations regarding predisposition genetic testing in pediatric research.
Appears in Collections:Axe 3 Droit, biotechnologie et rapport au milieu

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